Treating Pain in Children with Cancer: A 21st Century Innovative Approach (Pain Buddy)
The purpose of this study is to develop an electronic intervention, called Pain Buddy, to improve pain management of children with cancer. After the baseline phase where investigators will collect information on children’s pain experience, children will be randomized to receive treatment recommendations from their doctors/nurses using Pain Buddy for 6 months or to continue to be treated with the hospital standard of care.
Information Technology to Improve Management of Children’s Cancer Pain (C-TIPs)
The aims of this two-phase project involve development and implementation of a Cancer-Tailored Intervention for Pain (C-TIPs) targeting parental management of children’s pain. The intervention will be tailored based on parental characteristics, including anxiety, coping style, and attitudes and beliefs about pain management for children and will be delivered using a computer tablet while parent’s are in the waiting room during their child’s hospital visit.
Parental Perception and Response to Children's Pain at Home
The purpose of this study is to examine parental attitudes regarding analgesia and parental perceptions of children’s pain expression of children with cancer and other chronic illnesses. Secondary aims of the study also include how culture and ethnicity relate to parental use of complementary alternative medicine and how child temperament or parental personality traits impact these variables.
The Forgotten Patient: The Child with Cancer in Pain
The aim of this study is to assess parental attitudes about use of pain medication for children, as well as conduct a longitudinal assessment of parental pain management practices at home, including the use of pharmacological (e.g., analgesia) and non pharmacological (e.g., relaxation strategies, distraction) responses to children’s cancer pain.
Assessment of Health Related Behaviors in Hispanic and Non-Hispanic White Childhood Cancer Survivors
This study aims to examine the prevalence of health risk behaviors in adolescent and young adult (AYA) childhood cancer survivors as well as the role of acculturation in the development of specific health behaviors in the Hispanic population. Knowledge on risk factors leading to poor health behaviors will help pediatric oncologists identify at-risk patients and provide early interventions.
Delayed Effects of Reappraisal, Reassurance, and Distraction on Remembered and Anticipated Pain and Distress in Children Undergoing Treatment for Cancer
This study aims to understand the impact of children’s memory on pain and distress during repeated, invasive medical procedures for the treatment of cancer. Understanding the role of memory in this setting will inform specific and modifiable coping strategies to improve pain and distress in this vulnerable patient population.